But wait, there’s more!

A week ago, I got a new health diagnosis that makes me immunocompromised for the rest of my life.

Discovering this new disease in my body was completely coincidental. I had gone to the doctor for a separate reason and decided to get screening tests done just because they offered and why not. Turns out the screening tests were done at exactly the right time, when my body was just beginning to seroconvert. We caught it at the best time possible, but it still sucks catching any kind of chronic illness in my body.

I was told my diagnosis on March 25, 2025, and was instructed to go to a specialized clinic for treatment and support services the next day. The period between receiving the diagnosis and being told everything was going to be okay and being put on medication felt very truncated – I mean, it was only 24 hours. I walked away with the gist that as long as I took my medication every day, I’ll still live a long and healthy life. There was very little information given about what was actually going on in my body, how the disease might progress, what the virus does to the body, and how it may practically affect my daily routine. I was basically just told that I had this disease, but don’t worry about it as long as I take the medication.

It still feels like I’m missing a segment of processing, but I don’t really know what there is to process. I was told I have a chronic disease that leads to an immunocompromised state. I was then put on medication and told everything’s going to be okay. I’ve been repeatedly told that everything’s going to be fine. I can still live a long and healthy life. There’s nothing to worry about. Science and medication has advanced so much further from when this disease was initially discovered. It’s fine. Everything will be fine.

So why doesn’t it feel fine? Why does it feel like I have yet another burden to shoulder? It feels like a dirty secret. It feels different than having depression or anxiety, at least most people can relate to that.

A thought crossed my mind while processing my diagnosis this past week. As many of you know, I previously attempted suicide. One of the most common cliches said during a suicidal moment is being told, “You have so much to live for!” Really, this is what I had to live for? Being diagnosed and immunocompromised for the rest of my life now? You’re made to believe that things would get better if you don’t commit suicide, but this is definitely not better.

A part of me believes that I’ve gone through all this crap in my life because I can withstand it. I’ve proven that I come out stronger. But what else is there? Why? What did I do to deserve all of this trauma? When do I get a break? Am I just destined to be chronically exposed to traumatic events for the rest of my life? And if so, why? What’s the purpose of it all happening to me?

Rape, additional sexual assaults, the suicide attempt – these feel like past life times. I feel dissociated from these past traumas because I am not the same person I was during those traumas. But now with this new diagnosis, it makes me realize – holy shit, I have gone through a lot in my life. I’m not even 30 yet.

Whenever anyone has told me that I’ve gone through a lot and that I should be proud of myself, it never really resonated with me. Those things happened, I got through it, and now I’m here. I’ve never really felt those sort of comforting words. They just feel like empty words to me.

Now it just feels laughable because clearly I have not gotten through the worst of life, as I previously thought.

“But wait, there’s more!” It feels like I’m just collecting badges of life experiences, but not good ones.

That probably means I should counteract it with actually getting good life experiences, but there’s nothing I really desire to achieve further in life (aside from a happy marriage and a wedding). I am happy with the relationships I have in my life, my support system. I’m glad to have the people I do in my life, by my side, especially now. I have all the love I could ever ask for. I’ve been working on giving back to my community and with mental health advocacy. I’ve got a good grasp on my hobbies and what I enjoy doing. What else is it that I need to do? How do I stop the cycle of bad events? There’s nothing much else that speaks to me. What do I want to work towards? Especially now. What’s keeping me moving forward?

This is all coming on the heels of when I’ve finally weaned off my antidepressants also, which I’ve been needing to write about. I fully weaned off my antidepressants about a month ago and it feels great. I achieved something. Now this? What is it? Do I just need to always be on some type of medication every day? Is that the formula for my life?


2 responses to “But wait, there’s more!”

  1. BooBoo Avatar

    As fucked up as it might seem to like this post because it’s about only everything bad you seem to be experiencing instead of the good & wonderful things you’re clearly not. . . I, too, am going through a barrage of harsh & cruel realities being dealt to me on a silver platter like the world’s karma has a Butler with manners & hella fucking jokes. Since losing my husband this past July in 2024, everything seems to have come to a standstill. I feel like I can’t win for fucking losing all the damned time! It’s extremely unbearable to try & understand the actions of other people & wonder how in the hell they couldn’t care less about taking even more from you after my husband was taken from this world! Matter of fact it is his son, who wasn’t a son at all, who has the money for counsel & has taken everything left to me by my husband. And it wasn’t even a lot (to them maybe) but to me it was the only few things I had to live on & remember the “US” & ‘our life’ that we shared with one another. So, with the belief that what goes around comes around, meaning karma as well. I can only remain positive that the wrongs done towards me & against me will somehow be righted. When? Hell, I probably won’t live long enough to ever see it. Why? Because I’m that proud bitch who’d be like, “FINALLY! You got back all the negativity, & hurtful shit you put out in the world served right back to you.” I have to keep in mind to keep my mouth shut if I it, by any chance does come back around to the ones who have been set on making me pay for making my husband feel loved, protected, & safe from any heartbreak that could ever befall him. But instead I’m only seen as the ‘other woman’ he divorced his wife for. But today I accomplished something I never in a million years thought I would, I am a college graduate! Besides my own children & grandchildren that’s the one good thing I can say that I have acquired since the loss of my ol’ man, an associate degree in science in Medical Billing & Coding.

    Liked by 1 person

    1. 5’ 1” Stories Avatar

      Congratulations on your degree! That’s an amazing feat, and I hope you’re able to get some sense of stability with your new career. I worked data entry for a medical billing and coding company for a few years and those coders have some pretty cushy jobs. I only hope the best for you, and I do hope things come around your way soon. It feels so unfair when life gives you all these challenges. I do believe in karma too, and I believe things balance out…eventually.

      Since this post, I’ve actually gotten great news – the initial test results were a false positive. I’ve had two repeat tests that confirm negative results. We’ll be do another set of repeat tests next month just to be extra sure, but two negatives after a positive seem pretty good to me. It’s still been a lot to process within 2-3 weeks, and there are still things I have to follow up with other doctors and insurance to make sure everything is set back on track. I hope that gives you some semblance of hope that things will get better.

      I’m very grateful that you’re a consistent reader and commenter, even if it’s to commiserate together.

      Like

Leave a reply to 5’ 1” Stories Cancel reply


Read Next